1	National Capital Model Spinal Cord Injury System Project Director: Suzanne Groah, MD, MSPH Co-PI: Gerben DeJong, PhD
2	History of the SCI Model System NIDRR funded since 1970 Statistical center since 1983 Provides assistance to establish innovative projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and other rehabilitation services to meet the needs of individuals with SCI
3	History of the SCI Model System 1990-1995: 20 centers 1995-2000: 18 centers 2000-2006: 16 centers 2006-2011: 14 centers
4	History of the SCI Model System Seattle Denver Houston Chicago Ann Arbor Birmingham Atlanta Cleveland Boston NY West Orange, NJ Philadelphia Pittsburgh DC
5	NSCSIMC – Key Personnel Suzanne Groah, MD, MSPH – Project Director Gerben DeJong, PhD – Co-PI, PI P1 Donal Lauderdale, MSE – Operations Manager and KT Director Jacqueline Ennis, PhD – Director DB Samuel Gordon, PhD – PI P2 Alison Lichy, PT – PI Pittsburgh Modular Project Cathy Ellis, PT – Director Clinical Services Division Matt Elrod, PT – Clinical Administrative Manager Susan Horn, PhD – Co-PI P1
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7	National Capital SCI Model System
8	NCSCIMS 5 year center grant “Model Center” designation Highly prestigious
9	NCSCIMS System of Care MedStar Health MedSTAR Transport MedStar Trauma services ER One www.er1.org WHC Surgical critical care Neuroscience Unit Integration of SCI rehabilitation NRH
10	Clinical Objectives Broad Modifiable Encompass Time of injury Acute care Rehabilitation Return to community
11	Research Projects
12	2 Site-Specific Projects Project 1 Practice-based evidence Focus on pressure sore prevention Project 2 Demonstration project SCI Navigator
13	Multi-Site Collaborative Project ATM (Pittsburgh) Assistive Technology for Mobility Addresses disparities in equipment prescription and use
14	P1: PBE Study of Pressure Ulcer Prevention in SCI Collaborative project with Institute for Clinical Outcomes Research (ICOR) PI: Gerben DeJong, PhD Co-PIs: Jean Hsieh, PhD Susan Horn, PhD (ICOR) Pamela Ballard, MD MedStar Pressure Ulcer Taskforce
15	P2: SCI Navigator: Bridging the Gap Between Consumers with SCI and the Health Care System PI: Samuel Gordon, PhD Co-PI: Matt Elrod, PT, MEd Project Coordinator: Inger Ljungberg, BS Case Management: Ashley Harmon, MS SCI Navigator: TBD
16	P2: SCI Navigator Purpose: Reduce the occurrence of PUs Enhance overall health and life satisfaction for individuals with SCI Background: Trend toward decreasing LOS People with newly-acquired SCI often enter community with fewer self-care, mobility and self-management skills to adequately prevent secondary conditions
17	P2: SCI Navigator Setting: NRH and community Participants: 52 in each group Traumatically injured adult within 6 mos of SCI Community dwelling in NCSCIMS catchment area Design: Demonstration project Based on RCT
18	P2: SCI Navigator 1º outcome measures PU knowledge PU prevention behaviors Self-reported #PUs % attending 1^st physiatry appt % attending 1^st PCP appt 2º outcome measures Community living and participation CHART PARTS Life satisfaction
19	P2: SCI Navigator Y1: ID of SCI Navigator Y1-Y2: SCI Nav training/supervision Psychology, CM, Peer mentoring Self-management Health maintenance Research ethics Y2-4: SCI Nav implementation Y5: Analysis, dissemination
20	Assistive Technology for Mobility Study Background – individuals from minority backgrounds/lower SES were more likely to have poorer quality chairs and less likely to have back-up chairs
21	Assistive Technology for Mobility Study SA1: Investigate the impact of policy changes on customizability and features of wheelchairs and the number of working wheelchairs an individual owns
22	Assistive Technology for Mobility Study SA2: Assess differences in the quality of wheelchair provided and the availability and functionality of backup wheelchairs for historically vulnerable patient groups
23	Assistive Technology for Mobility Study SA3:Examine patient and provider factors independently associated with study outcomes
24	Assistive Technology for Mobility Study SA4: Investigate the relationship of distance traveled, time spent active, and speed traveled in a power and/or manual wheelchair and associate this with: Type of wheelchair Wheelchair breakdown Participation and quality of life Wheelchair skill